by SnowflakeI figured that I ought to mention some RL issues I ran into that I would rather write down so folks know what is up.
Back in August of 2015, I noticed I was having problems playing WoW
because my hands would start shaking and I would make mistakes pointing the mouse or clicking the right buttons on it. At first, like any good Macho Mexicano, I just ignored the problem figuring that I was just getting jitters.
But then by December of 2015, it was starting to get bad enough that it was interfering with my work. I was having problems using the mouse on my work Mac and was making horrid mistakes spelling while programming and my co-workers were noticing the tremors. So in early January of 2016, I saw my PCP and he thought I had Essential tremor and that I needed to see a neurologist.
So in March of this year I saw the neurologist, who agreed with diagnosis. We went through a couple of drugs before we found one that worked and did not give me asthma attacks (a bad thing if you are trying to run a half marathon!). So in August I got back to the neurologist for a followup to see how well the treatment for the Essential tremor was working.
Well, she found that while the Essential tremor was under control, that there was another tremor while at rest that I had not noticed. She thought it might be early Parkinson’s, but she was not sure, so she referred me to her boss, who by coincidence was running a clinical trial on a drug to delay the onset of Parkinson’s. So I go see the Big shot
and he is not sure either. Then I point out to the Big Shot that if I sign up for the clinical trial, that the drug company that is sponsoring the trial will pay for a DaTscan that will help confirm it. So I went in on October 26th and had my brain scanned and early Parkinson’s was confirmed.
I was annoyed to have been diagnosed with this, but happy that I am living in a place (Boston) with access to the best in medical care and to be working for a company with a good health plan. My father (who has Alzheimer’s but is doing well on one of the pills) is one of 16 kids, 2 girls, 14 boys. Half of the boys had Alzheimer’s and the others had Parkinson’s. So I was sort of expecting/dreading that I would end up with one or the other. I prefer the Parkinson’s myself.
So I started the clinical trial today. They did a very thorough examination that anybody who has been abducted by aliens might describe. They even had a special doctor come in to take some Cerebrospinal fluid to test. Found out that he is the guy that tests the Patriots for traumatic brain injury.
So, with any luck, now that the shakes are under better control, I can get back to playing more and testing the guides.
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WheeeMy husband’s family has Essential Tremor – in their case, it’s called familial tremor, but apparently it’s the same thing. Not that it’s any of my business, but does the Parkinson’s dx replace, or is it in addition to, the essential tremor? If it’s replacing, make sure the meds for the essential are gone unless it’s useful for the Parkinson’s. Apologies if I’m butting in; you poked the Caregiver button. My husband’s got cancer at the moment, and it’s real easy to get me in that mode these days. 😀 If you have any questions about Essential Tremor (from a viewpoint of someone who has it) I’ll be happy to pass them along. My husband’s the 4th member of the family I’ve watched with it, so we have some experiential knowledge.Good luck with the trial results!
42I haven’t been around here that long, but I appreciate the time you took to tell this to the rest of the community 🙂 You appear as a pretty central part of the community 🙂 The best of wishes with your condition.
Health issues.Wow, that is a challenge. I wish you all the best.
health…Take all the time you need Ludo…. we might not know how to do the coding… but we’ll try to keep up on the guides….
Hope they can manage itHope they can manage it without giving you extra symptoms you don’t need. Glad that they caught it early, so hopefully it’s easier to keep under control.
Thank you … Thanks so much for sharing that with us Lud. I know I can safely say that we all appreciate everything you do soour game enjoyment skyrockets. You’ll be in my thoughts a heck of a lot. Take it easy eh? … and try to kick back and relax.Cheers. AthyrmystDruid of Moonguard
All the bestOh dear, that really sucks. My best wishes go out o you Ludo. A good friend of my grandmother’s has a severe case of Parkinson’s and although she does manage the condition quite well considering the circumstances, it’s still not a matter to trivialize. At least you have good medical care, that always helps.I myself had several cerebrospinal fluid extractions when I was 7 to 8 years old, when I had an agressive case of Meningitis, so I know what that is like and I don’t envy you…
I wish you all the luck you need.Life sucks sometimes. I hope you get it under control.